Could Not See Baby's Spine at 19 Week Ultrasound

The 18 -20 week fetal anomaly browse is a watershed in most pregnancies because for the majority of women it will be the last time they are scanned earlier giving nascence. Some people nosotros talked to had not had a 18-20-week scan, either considering their babies' abnormalities had been detected by before diagnostic tests (e.g. the amniocentesis) and the pregnancy had already ended, or considering the scan was not routinely offered in their region 5 or more than years ago.

All women are offered a dating browse, and an 18- 20 week fetal bibelot ultrasound scan, in line with NICE and Great britain National Screening Committee recommendations.

For many other women, the 18-20 week scan was the point at which they discovered the baby had serious problems.

Describes her realisation at the twenty-week scan that something was very wrong with her babe.

Describes her realisation at the 20-week scan that something was very wrong with her baby.

Age at interview: 38

Sexual activity: Female person

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I came back probably about 17 weeks pregnant and had the anomaly scan at 20 weeks and similar nearly people expected everything to be fine and to come up away with a lovely picture just unfortunately that isn't what happened.

What happened then?

We went, I went in to the scanning room and they're quite bland facially anyway, whether everything's fine or not they just expect at the screen to showtime off with and do measurements but I very quickly realised that the woman'southward demeanour wasn't, even for a bland confront, was apropos.

And before they gave me any of the results she asked a colleague to come and told me she wanted to check something, with a colleague, and past then I was getting very concerned because I'd never had that happen before. And they actually asked my married man to come in before they spoke to me.

And the outset few things they said it didn't sound equally affair, every bit though things were terribly wrong. It was just a few trivial things like the kidneys were hard to detect, and the stomach was hard to find, simply that might be considering information technology wasn't filled with fluid. It was probably all correct only hadn't had any fluid in information technology at the moment.

And they took the states out of the scanning room, into a more than placidity room while they typed up the study. And even at that early stage it was beginning to sink in that there was something actually not correct.

And as, and as shortly every bit I saw the pictures of the scan, having had ii normal pregnancies, fifty-fifty I could see that there was a marked contrast between this pregnancy and the pictures that I'd had previously. In that location was a very marked lack of amniotic fluid which made it difficult, not even for the scanners to see, that made the picture of the scan wait very, very unlike.

He did non expect to find out at the xx-week browse that there was annihilation wrong with the baby ...

He did not expect to find out at the 20-calendar week scan that in that location was anything wrong with the baby ...

Age at interview: 38

Sex: Male

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So carried on with the plans, and, you know, planning for the, another infant to come forth and then nosotros went for a xx- calendar week browse which is obviously the big one and very exciting, seeing all the arms and legs and over again everything was going fine, 'Look here'due south the baby, here's the length of baby'.

And the doctor - because it was a doctor rather then simply the, a sonographer or whatever the correct term is - was scanning my wife, and she hovered over the heart of the infant and said, 'Oh in that location's the heart, we'll come back to that'. And equally soon as she said those words, both of us were like, 'Well what's wrong?'. Because nosotros knew that that wasn't normal, that wasn't what we'd experienced earlier, it wasn't just the, 'There's the arm, there'south the leg, oh look the baby's moving'. It was, 'Oh nosotros'll come up back to that'.

And information technology turned out the baby's heart wasn't forming properly, the chambers weren't forming properly. So one time once again we were right dorsum down, actually no, really non knowing what to wait. So we'd gone through the Downwardly'south syndrome or worse scare, we'd had conversations virtually what we would do, if information technology was confirmed that it was Down'due south syndrome or another syndrome, another sort of chromosome abnormality. Nosotros'd sort of put those discussions to the dorsum of our mind, and and so all of a sudden in that location are other abnormalities so yeah it was a scrap a bit of a shocker [laughs].

I think that's an understatement.

Yeah, yeah. And it was then because we were at twenty weeks by this bespeak, at that place was only fairly brusk window to actually, to go some more tests done, discover out what the issues were, and so make whatever decisions that might have to be made.

And at that point I don't think we, I don't call up we realised that there might have to be a decision, because we'd talked about it with, with Downward's and the other possible problems, but at this point it was, well okay what tin exist done to set the problem - considering yes the centre's not developing properly simply there must be something we tin exercise.

xviii-20 calendar week scans provide clinicians with more information than earlier scans considering by xviii weeks a good for you babe should be larger and improve adult. Health professionals use the xviii-xx calendar week scan to examine the baby's size and position, and likewise to check if his/her encephalon, heart, lungs and other internal organs are developing equally expected.

Severe chromosomal weather condition such as Edwards' syndrome are now often picked up in the outset trimester antenatal screening simply it will usually be more than obvious at the 18- xx calendar week scan, though ordinarily a firm diagnosis will not be fabricated until one or 2 specialists have weighed up all available prove about the baby - which usually ways that another expert needs to scan the baby again, or until the woman has had an amniocentesis.

Sometimes women were told that the sonographer had constitute a 'marking' or sign of a chromosomal status and had to wait for an amniocentesis to confirm the findings. (See 'Resource').

She was starting to relax when she went for the xx-week scan with her female parent but and so the...

She was starting to relax when she went for the 20-week scan with her mother but so the...

Age at interview: 38

Sexual activity: Male

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Mother'  So information technology was just, we were coming up to the 20-calendar week scan and I was merely getting more relaxed, just actually starting to wait at maybe baby catalogues or, you know, going down the infant alley at the shops, which I'd always avoided. Went off for the 20-calendar week scan, which yous didn't, yous weren't there, were y'all, for the first scan?

Father'  No, no.

Mother'  And then obviously quite relaxed. [Married man] couldn't make information technology. Fine, go on my own. We, I was with my mum, and they scanned and found choroid plexus cysts on the encephalon, which is simply a mark, it's a mark on the encephalon, it's a, what they call a 'soft mark'. It'due south quite mutual, perhaps one in x they find these, and inside a few weeks they disappear. But information technology is a soft mark for Edwards' syndrome.

And so I was, they couldn't actually finish the browse and then, the infant was moving around as well much, then they couldn't browse the middle and the stomach. I went away and came back, and she couldn't get a good picture show. Then had to come up back in a week's time for a scan, which once again is quite a common affair I found out. I wasn't unduly worried at all. I had my little leaflet, printed off leaflet about choroid plexus cysts. And so it was quite common, this is what happens.

I had an appointment with my consultant 2 days later, and again he said, y'all know, 'Very common - shouldn't worry about it as well much, y'all know, if, the problem is if they find anything else wrong'. So choroid plexus cysts on their own, no trouble, but if there's something else wrong, then that'due south a trouble.

Went back a week later for the browse and, you were with me for this i, weren't you? This was on the Friday. And I could see, before she fifty-fifty said anything I could see that at that place was something wrong with the heart. She brought upward a film of the heart on the screen. And having read, since read my data on Edwards' syndrome, a good 85 per cent have issues with the heart. And you could run into, where you should have a picture of four chambers, you could really encounter 2.

The sonographer told them the baby's femur (thigh bones) seemed quite brusk merely didn't explicate...

The sonographer told them the baby's femur (thigh bones) seemed quite brusque but didn't explain...

Age at interview: 32

Sex activity: Male

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I wrote a few things downwardly final nighttime when we were trying to get over things, but to remind myself. But on, in the middle of March, 10th March information technology was, we had a twenty week scan. Nosotros must have had one before that as well, we must have had one before that, only information technology came back quite normal. But at the 20 calendar week scan, which was on a Midweek, nosotros saw the nurse at the local hospital, the sonographer, and she did a browse and she plant that the femur length was quite curt in the, in the fetus.

She didn't say at the time that it was a major problem or that it was something to picket out for. She simply said, 'It'southward a bit brusque, it needs to exist checked' again basically. And of course some other measurements she needed to have like the width of the skull, which she couldn't take because the fetus was in the wrong position. Then she said, 'Come dorsum on Mon. We'll make an appointment with the senior sonographer, the consultant at the local hospital, and she'll do your browse and she'll be able to tell you lot more than things'.

Then we left it there, and we didn't actually think that at that place was anything actually to worry about after that scan. Possibly with hindsight we could accept been more than worried about it, but was probably a good thing we weren't, because nosotros weren't worried near annihilation basically.

No, we really didn't, with retrospect we probably should have, merely not at all, it never occurred to us to be worried nigh information technology. And so on the Monday we went in to encounter the senior sonographer, I recollect she was a consultant at the hospital. And that was Monday afternoon.

We went in, had a scan, I can't remember the exact sequence of events because the baby was still in the wrong position. And and then we had to go out a couple of times, [wife] had to walk around, and she had a drink of water, which is supposed to sort of change things inside, or help the baby turn around or something because the sonographer couldn't get the measurements she wanted.

She wanted to accept a look at the skull, which was the main thing, but she couldn't meet it from where the baby was. So we had to become in and out a couple of times, and we were just waiting around for ages and ages. Eventually she got the measurements she wanted.

And I remember, the first thing I remember when something might be wrong, was I saw, I finally, we finally saw an image of the skull on the screen, and there appeared to exist a sort of black hole shape in the middle. I recollect thinking, 'that doesn't look quite right'. It's, I mean you tin't tell from these scans what you're looking at actually, but I remember thinking, 'it just doesn't look quite right' or something, simply I didn't requite it much idea.

And shortly afterward that, that scan we'd finished and the consultant leant back and said, 'I'chiliad afraid nosotros accept some problems here'. I can't recall the exact words merely she said, 'There might exist some fatal bug with your baby'. And at that, I allow out a scream I think. I let out an animal scream and [married woman] kind of leapt onto me on the bed. And... it was just a flake of a shock because it's not really what you want to hear - you don't really expect that.

But she told us, she told u.s., she gave us some more detail, she said, 'There's this, in that location's a big gap in the brain where at that place shouldn't be'. Which is what I'd seen. And... it's, I tin can't remember exactly what it was now, it'southward about where the brain is supposed to course. It's a scrap at the back of the brain and - no I tin't recollect what it is - it'due south chosen, it's something that's called Keen-Walker mal

The Royal College of Obstetricians and Gynaecologists (RCOG) take produced a report on 'Termination of Pregnancy for Fetal Abnormality in England, Scotland and Wales' (May 2010).

Within it are a number of recommendations for the communication of findings from ultrasounds. The following is a quote from their report:

"If the browse reveals either a suspected or confirmed abnormality, the woman should be informed by the sonographer at the time of the scan. It is essential that all practitioners performing fetal anomaly ultrasound screening should be trained to communicate abnormal findings to women, as such information is likely to take pregnant emotional impact.

Unremarkably, sonographers will inquire a senior sonographer colleague to confirm findings and this should be done immediately. If an abnormality is confirmed or suspected, referral is usually required, although some obvious major fetal abnormalities, such as anencephaly, may not require a 2nd opinion (this should exist decided by local guidelines).

For women who have been given sorry news about their baby during the scan, in that location should exist a health professional bachelor to provide immediate support. In the example of a suspected abnormality, women should be seen for a second opinion by an expert in fetal ultrasound, such as a fetal medicine specialist. An engagement should exist bundled as soon as possible and ideally within iii working days. Any delay in receiving more information virtually the abnormality and its implications volition be distressing for women and this should exist acknowledged.

Limitations of the eighteen-20 week browse

Though the eighteen-twenty week scan tin detect when certain parts of the baby's body have grown abnormally, it may not be possible for clinicians to identify why it has happened or make a firm diagnosis based on the scan lonely. Sometimes doctors will wait to give the baby more time to develop and carry out repeat scans - this had confused several parents we talked to who had gone for repeat scans not knowing that the baby might accept a trouble. For example a couple who knew their baby was 'on the small-scale size' were told he was fine at the 18-xx week scan, but discovered at 32 weeks that he had microcephaly.

Feels that her 20-week scan was as well fast considering she was told that her baby looked fine fifty-fifty...

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Feels that her 20-week browse was as well fast considering she was told that her baby looked fine even...

Age at interview: 29

Sex: Male

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Mother'  That he was small. That he - I think I was 21 weeks and 3 days, and he was coming up at 19 weeks and 4 days, or something like that. Then he was most two weeks smaller than what he should have been. But other than that everything was fine. They said the brain was okay -

Father' Nosotros were in there for a thing of minutes, literally -

Female parent'  In and out. Yeah - in, stomach, out. That's fine. Encounter you in -

Father' Two or three minutes at the outside.

Do you have whatsoever thoughts about that? That they could accept spotted something, or non?

Mother'  I recall they mayhap could have done, if they had looked a bit closely.

Father'  When I think well-nigh how long it took them to deliberate ultimately, peradventure not, but information technology but felt like a fleck of a fast food situation, didn't it?

Mother'  Mm.

Father'  You're in and out and that was it. And I tin, the words that the scanning member of staff used, "Everything's fine", will stay with me forever. And how incorrect could they be?

Some parents wondered if it was possible to accept the aforementioned scan done at 16 weeks rather than xx weeks. Some hospitals do offer before bibelot scans of the baby, but they will not show equally much detail as scans performed between 18 and twenty weeks.

Sometimes a mail mortem was needed to confirm the 20-week diagnosis to run across if the baby had inherited a genetic problem (such as Fowler syndrome - run across 'Resource').

Specialist scans

Sometimes specialist scans such as 3D scans, or MRI scans, are used to examine the infant in greater detail. Specialist scans are performed in specialist fetal units and if clinicians feel that in that location might be issues scanning will exist done up to 32 weeks.

Specialist scans had a powerful effect on some parents considering they could see the baby more clearly and in some cases people recognised which parts of the baby's torso were not working properly.

He was very much affected by seeing his baby's face on a 3D scanner and says he tin can remember her...

He was very much affected by seeing his baby'southward face on a 3D scanner and says he can remember her...

Age at interview: 45

Sex: Male person

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Well, at the regional infirmary it was a 3-D scan. And that was boggling to see the detail that that could offer. In fact, interestingly enough, going sort of. The consultant at the time wasn't really that interested in that imagery.

It was interesting - well it was fantastic to see this fetus and to run into this kid that was yours that was horribly ill - simply you didn't really become much opportunity to encounter that because the consultant was more than about measurements and all sorts of blood flow and various other screens coming upward.

My wife turned the screen away from her. She didn't want to see the baby. I did. And I'm glad I did and she's glad she didn't. I think at that fourth dimension she had come up to terms ameliorate with the fact that this babe was going to be terminated, and I don't call up I was quite at that place. But even if I was there, I nevertheless think I would accept wanted to see the detail on the scan.

The matter that I have a very strong memory of is this child's face in amazing detail. I call up thinking, 'Gosh' I now know it was a girl, I didn't know that so, that, 'She looks just like her blood brother'.

But y'all could see in that location was something wrong? Could you tell? I'm trying to understand because I haven't seen a 3-D browse, what it tells the parents?

No, you couldn't see there was anything incorrect.

But you could see her face?

You could meet her face, and the major aspect that was, that was the indication of what was incorrect was the thickening at the back of the neck in this example, which, when you lot're looking at a fetus is, you know, sort of half a centimetre thicker or non is completely immaterial to me, and would look like a completely normal neck, merely from the point of view of the consultant was severely abnormal.

Really y'all could tell from the brain development every bit he scanned up through the chambers of the brain, that one quarter of the encephalon, ane bedroom was not evident. And then I suppose from that aspect, listen you having not been told that or sitting there, I wouldn't accept idea necessarily that was odd. But it was very evident. And that was scanning up from the above the caput, so y'all were coming upwards through the child's head, then you were seeing the chambers in the brain, sort of it was evident in all four chambers of the brain, then suddenly i chamber was empty.

She contrasts her feelings almost the pregnancy at the dating scan when she was total of hope and...

She contrasts her feelings well-nigh the pregnancy at the dating scan when she was full of hope and...

Age at interview: 37

Sexual activity: Female

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So we decided that, to have the browse and we went along I think early on in the week for that, and spent quite a lot of time with the consultant after that.

How was that scan different from the dating scan? Can you describe the departure between the scan at this later on phase in a pregnancy? Is it the same browse or is it the same equipment?

Mm-hm. I remember information technology'south the aforementioned - in fact I think it was probably the same room, same consultant - and [sighs] I suppose it felt upsetting because at the dating scan you're full of hope and this scan nosotros knew wasn't going to be good, nosotros knew information technology was possibly the terminal time we would see the babe moving around. And it'south like, I really wanted to see information technology and I didn't, and it was... information technology was very mixed. As you felt that, you know, it was probably going to show lots of problems and information technology just wasn't what we wanted, merely at the same fourth dimension we needed to sort of see it and, we needed to prove it I suppose. I felt I needed proof of what was incorrect before I take such a huge determination and that I couldn't do information technology based on what someone had written on, on the paper.

And what did you see on the second browse?

The infant was very, very small. Information technology wasn't measuring at all the correct measurements for the age - there was a center defect, the limbs were sort of distorted, the artillery were, y'all know - you lot could see that the arms were very sort of contracted, the hands were contracted.

There was an extra digit on i of the hands. Again the legs were quite twisted, they said that the babe'southward sternum was very short - things weren't in proportion you know - the caput was quite large, the neck was very thick, there wasn't really like a cervix as such... it was just things were kind of - there were lots of things that manifestly the consultant could see that we weren't aware of. And she said that, y'all know, as the, if the baby did develop further there would probably be other issues with internal organs that weren't really that visible at that stage.

So and you could run across the exomphalus, this little pouch, which was obviously just the intestines where they are. And there [sighs] was a very dark patch over i, where the eye socket was, and they didn't know information technology, in the Edward's babies sometimes the eyes don't develop properly, or it might have been haemorrhage, they weren't very sure.

So it was, there was very, very little movement from the baby because I remembered offset time round by that phase, you know, that the baby was quite big and it moved effectually a lot at a later scan. And this babe sort of floated, and occasionally there was a slight move, but it was very yous could almost come across that he was actually poorly just from looking at the screen.

Did you, how did that browse make you lot experience?

I felt more than informed, and I felt that that was what I needed in my head to see y'all know, that I've got to accept now that this, all these things are real on the screen and this was really my infant that'due south suffering all these things [sighs], simply I was sad besides. Hugely upset that to recall that the baby was so poorly. And I, and, I felt the weight of deciding what to do nearly it. And at the end of the solar day however much we talked about it - that it was going to be the ii of the states to make the conclusion and me to actually yous know, get through information technology and decide that that was what was going to happen for him - and I just, I didn't want to do it.

But you know I knew we had, we had to make a decision that was right for the baby as well. And nonetheless we asked to run into apaediatrician to speak nearly, yous know, what these things meant for the baby. And we spoke to lots of different people, and I retrieve we were, nosotros were desperately looking for someone in the hospital who would say y'all know, 'at that place'south a blink of hope' or 'I could do this for the baby' - and there wasn't anyone anywhere in the hospital who could offer the baby a improve outcome.

And basically, we were just told that, that he was, he was dying, and that really it was my torso that was only keeping him going - and I wasn't very well - and that that was possibly toxins from the baby that were in my arrangement and they actually didn't know how the pregnancy would continue if we had continued. And that it, if he was built-in... that near - I think they said, about l% percentage of Edward's Syndrome babies would die within the first half-dozen months, and the other 50% within the beginning 12 months - and that our infant had the, the full syndrome, then it affected all parts of his body and that his brain wasn't properly adult. Then there wasn't whatsoever time to come for him, and that nosotros wouldn't be able to always take him home. And then that fifty-fifty that sort of the option of, you know, having him at home and but caring for him wasn't going to be open to us.

Touch on of the 20-week and afterward specialist scans

Many parents were shocked by findings from the 20-calendar week and later scans. Some people had underestimated how serious whatsoever abnormality found at this stage could be for the baby. Others, including those who had been given leaflets to read about the scan beforehand equally well as some who were health professionals, said that they had been naïve about the xx-week scan.  Several women had taken young children with them to the 20-week scan because they expected to see 'nice pictures of the infant'.

She and her family went to the 20-week scan and were asked to return in two day's fourth dimension when she...

She and her family went to the 20-week scan and were asked to return in two day'due south time when she...

Age at interview: 31

Sex: Female person

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Where we were living and then at the time you only had a scan at 20 weeks. Then at twenty weeks I went for my browse with my hubby, with my daughter, to get our photographs. And information technology was Christmas Eve and at the time I didn't think, the sonographer did spend a little bit of time scanning us and queried my dates several times and then explained that she couldn't quite see the baby's centre properly and would we come back in a couple of days?

At the time the same thing had, exactly the same thing had happened to my friend a month before, and her scan was admittedly fine. And then when that happened to united states of america I actually didn't worry, I thought, you know, it was literally the babe was in awkward position, they couldn't come across the heart and that was why.

So we went dorsum the day after Boxing Day, the 27th, and the consultant greeted us, which made my alarm bells go, and she started scanning us and I retrieve her lines were, 'What concerns me about this infant is that they've got a diaphragmatic hernia, which has meant that office of the tummy of the baby was in its chest cavity.'

So I can't call up an awful lot more than about that scan apart from that feeling of searching of how to react in an unknown situation - your encephalon's kind of trying to work out what to say, what to do, but I had no idea what to say or what to do and I recall my first thought was, does that mean our start daughter's okay? Could she perchance accept something that's non been detected?  Which she reassured u.s.a. that she'd be admittedly fine, this was a i-off.

She took her eldest child along with her to the 20-calendar week scan only was told that the baby she was...

She took her eldest child along with her to the 20-calendar week browse just was told that the infant she was...

Age at interview: 36

Sex: Female

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Subsequently that I got, I, it was about in, in 19-, hang on a infinitesimal, 2001 I got pregnant again, slightly unexpectedly. And I went for, I went for a normal 12-week scan, at my local hospital and everything, they said everything was fine, there was no trouble.

So I sort of went abode quite, fairly kind of happy and I, at, at this signal I hadn't any idea things could become incorrect anyway. Then I was a bit ignorant of the kind of things, you know, what the scans were really doing - perchance it was, a bit na've I remember. And and then, so I went to my next scan, which was the 20-week abnormality scan, and nosotros took our get-go child with us, I think he was 17 months old at the time. And that, that was when things where information technology started going a bit wrong.

I hateful the lady who was scanning was very serenity for a long time. I did call back it was a fleck strange that she wasn't talking, and so she sort of said, 'Oh, I call up there's a problem. I call back there might exist a trouble'. And she sort of got up and walked out of the room and called someone in. And they, sort of two of them were looking at the browse machine and so they sort of switched everything off and said, 'Oh, I think nosotros have, might have a problem'.

And they took me into another room. I think I don't... everything just seems a real blur considering it was, it was such a strange experience. I couldn't actually believe what they were saying. And they took me to another room and they explained that the baby had what they thought was ventriculomegaly or something. I didn't really know what that was. They sort of drew some diagrams, and they said, 'Simply we need to refer yous to a specialist to ostend the diagnosis'. And, so they sent me dwelling house at that stage because they said the specialist wasn't bachelor till the following solar day, which was awful. I constitute... It would have been dainty to see someone straight abroad considering I was in such daze.

So we went home actually and I sort of had to retrieve about it all night. I didn't sleep that night I don't think. And the adjacent 24-hour interval we went dorsum to the hospital and we had another browse with a specialist, and he confirmed information technology was a condition called holoprosencephaly, which I'd never heard of whatsoever of these words earlier, they were only such long words. And I'd been on the internet looking upward all sorts of things and everything was so negative, it was very depressing, because I thought, 'Well, maybe they've made a mistake, or peradventure information technology's something they can fix, I don't know'.

Others said they were shocked because all the early diagnostic tests (e.g. claret tests, CVS) were clear - and as i adult female put it, 'later on the triple test* (Down's syndrome screening) yous cease thinking anything tin go wrong'.

Says that because all the earlier tests had been fine her mind had closed to the possibility that...

Says that because all the earlier tests had been fine her mind had closed to the possibility that...

Historic period at interview: 25

Sex activity: Female

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It was the end of January, very terminate - virtually the 29th - I'd gone into, I'd gone into five months by then. I call back I was about xx weeks cos they, the hospital I think did the 12 and the 20, that was their standard matter and, yeah, so I got the 20 weeks one.

And again, you know, y'all read all the books and it tells you lot 'this is the diagnostics', simply after a while yous don't hear that inside your caput any more...

Do you desire me to turn off?

No, no, no, I'm fine - because everything's perfect. Yous've had a scan, you lot've had the blood tests, you've been good. And everybody knows and everything is correct. And so this one can't tell you anything, it's pictures, you're going, you're going to see your baby, y'all're going to go pictures. After the triple test you stop thinking, you stop thinking that anything can get wrong. And, it does non occur to y'all in the slightest. The only thing y'all're thinking at present is the nascency, and what if something goes wrong in the nascency?

Your mind has closed to the possibility that in that location could be annihilation incorrect. You've had, you lot've had your Downward's Syndrome check and that's okay. You've had your, you know, yous've had your triple test and everything was fine. This i cannot bear witness you anything, that's what'due south inside your mind.

I tin can feel my child kick, it responds when he shouts at football game - I mean literally, this baby used to dance around whenever he'd similar scream at a goal - and there cannot be anything wrong with this child because it's function of usa already. It's part of our family unit. And nothing prepares you at all. You know there's always that scrap on the bottom of the thing, 'These are diagnostics, practice not bring other children,' - blah, blah, blah.. it'southward not, you know, it's not a family outing kind of thing, but it feels like it. I mean, you just, you're but overwhelmed, it's and so much fun. We're going to go and see them.

All pregnant women should be given the booklet by their midwife or GP 'Screening tests for you and your babe' by Public Health England, which gives detailed data about the types of scan offered and what they are looking for.

Many people were deeply affected past their experiences of the 20-week and subsequent specialist scans. Many described how sonographers and doctors were very restrained and didn't speak at all until they had analysed all the baby'due south details. While some parents understood the clinician's restraint - fifty-fifty when they had to wait an 60 minutes or more for a definite diagnosis - others disliked being kept in suspense and wanted to be told what the clinician was thinking. Several parents said they would have preferred being told something, even it was vague.

He describes the tense temper at the 20-week scan and how difficult it was having to expect for...

He describes the tense temper at the twenty-calendar week scan and how difficult it was having to await for...

Historic period at interview: 45

Sexual activity: Male

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Nosotros'd just spent some time away on a, on a summertime holiday and come back expecting to have this browse and be told, 'All fine. Away you go'. My married woman had been very, very healthy, more healthy than the start pregnancy, and of course was shattered past the fact that the news, the news was bloodcurdling, very serious faces.

The thing about that which I felt was hard is that nosotros could tell when being scanned that there was something very seriously wrong. No sort of questions about, 'Exercise you want to know whether it's a boy or a girl?' or sort of light conversation that nosotros'd, we'd experienced before with previous scans. Information technology was just sort of deadpan faces, very serious looks, someone else coming to check. And I wish that I'd been told at that point, that somebody had actually turned round to me and said, 'Look, I'yard sad, but I think there's something very incorrect. We don't know, merely it'south not looking good'. And that was a terrible moment to exist sort of hanging on, waiting.

I know it sounds odd that you lot desire to hear that it's wrong, but you, you know it's wrong, and y'all, you lot want to be reassured either that information technology's okay or is in that location something seriously wrong. And in this example the scan was very axiomatic that there was something very seriously wrong.

And the local hospital wanted to send u.s.a. off to the regional hospital to actually confirm that, and were non really prepared to say at that time that there was something very seriously wrong. At that point, I got very not upset but quite sort of strongly severe sort of with the people at the hospital proverb, 'Await, you lot know, that's 24 hours, peradventure a 48 hours' wait - that's not something that's tenable. We need to accept your stance'. At which betoken they turned round and said, 'Well, there is something very seriously wrong with the baby, nosotros don't know exactly what, merely y'all exercise need to have a more than in-depth browse at your regional infirmary to find out the particular'. Then at to the lowest degree then we went to that next stage prepared for the worst actually.

A few people recalled how frightened and alarmed they became when they sensed that the atmosphere in the scanning room changed in an instant from 'jokey' to serious when the baby's problems were detected.

They had several scans late in the pregnancy because of her gestational diabetes and they were...

They had several scans late in the pregnancy because of her gestational diabetes and they were...

Age at interview: 37

Sex: Male

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And so, yeah nosotros got to, carried on with the pregnancy, kept seeing the consultant, kept sitting in the waiting room outside, because in that location was a terribly long waiting fourth dimension sometimes, depending on what time you had the appointment. It seemed a very capricious organisation, then yous quite oft sat exterior in the waiting room for a couple of hours before you actually got to run into the consultant, which was, seemed you know, I kind of remember thinking earlier nosotros went in to meet him on the particular day when we found out there was a trouble, 'Why are we sitting here? There's nothing incorrect, you know, we've had all the tests, everything's fine,' and being very upbeat nearly information technology all. And I, my husband and I both ran our own business at the time so we were drastic to become back and do some work, and things were going really well, so..

Anyway we went in for the meeting with the consultant on this particular time, and nosotros'd got to, I was 30 weeks pregnant by then. And you know, nosotros were laughing and joking. I'd had the scan in the scanning room, I tin't call back what they call it at present, it's silly, it's gone from my caput. But everything seemed fine and nosotros'd been sitting waiting to run into the consultant, and I'd had an test on the bed. And my married man, we never got to sit side by side to each other in the consulting room, my husband was across the room from me, and I was sabbatum side by side to the consultant, and nosotros were laughing and joking with him near, y'all know, the home commitment, and everything was going to be, 'Are y'all even so on for the habitation delivery?' 'Aye, if that's okay with you,' kind of thing, like you do. And it all seemed and so near at hand, you know, 31, xxx weeks, yous feel like you're nearly, you're on the home stretch.

And so suddenly, I was still laughing and we were all very upbeat, and and so all of a sudden, he suddenly said, but I was still, still laughing, and he said to me, 'Oh, at that place might be a problem, in that location might be a problem with the, I retrieve this baby has hydrocephalus'.  And I said, I was still laughing, and I thought he was joking with me, and he said... now I sort of could tell from his confront that by that point he wasn't really joking anymore. And I tin can merely remember flashing a await at you every bit if to say, 'Have I made a error here somewhere? Have I misunderstood what'southward going on?' Can you recollect that minute?

*The triple test (claret test) is now no longer offered every bit a screening test and the quadruple test does not requite a risk cess for neural tube defects. Spina bifida is now more than unremarkably diagnosed during the ultrasound browse carried out around week 12 of the pregnancy or, more probable, during the bibelot browse carried out around weeks xviii to 20.

Concluding reviewed July 2017.
Terminal updated July 2017.

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Source: https://healthtalk.org/ending-pregnancy-fetal-abnormality/the-18-20-week-antenatal-scan-and-further-tests

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